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Telethon 2024 Cocktail
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Join Boston Accueil and the French Library at this special fund-raising evening, in favor of AFM Téléthon.
Enjoy an evening of cocktails, culture and community for a cause!
Join us at the French Library with guest presenter Mathias Lambert, Rare Disease Expert, sharing inspiring insights into Téléthon's impactful works.
This event is made possible thanks to the support of sponsors: Nouvelle Maison, Michette Bakery, Colette Bakery, La Voile Restaurant, as well as SPR Studio, Solid Biosciences, the Consulate General of France in Boston, and the French Library.
Tickets are only 30$ and all proceeds are be donated to the AFM-Téléthon fund.
📆 Date: Tuesday, December 3, 2024
🕕 Time: 6:00 PM - 8:30 PM
📍 Location: French Library, 53 Marlborough St, 02116, Boston (Directions)
🎫 : Registration on Eventbrite.
Organized by:
About Mathias Lambert, Ph.D., Senior Research Scientist
Matthias Lambert, Ph.D., is a patient-scientist and a leading expert in rare muscle diseases.
After completing his Ph.D. in Health and Life Sciences at the University of Lille, France, in 2016, Dr. Lambert moved to Boston to research Duchenne Muscular Dystrophy with geneticist Prof. Louis Kunkel at Boston Children’s Hospital and Harvard Medical School.
He later established the first research program dedicated to his own genetic condition, called TPM3-related myopathy, earning prestigious awards from the NIH and the Muscular Dystrophy Association.
In October 2024, he joined Vertex Pharmaceuticals to advance pioneering therapies for patients. In addition to his research, Matthias is an active advocate for patient and disability rights.
He has served as an ambassador for AFM-Telethon for several years and, in 2023, launched the first French Telethon in Boston, bringing together the French community to raise funds for rare disease research and therapeutic development.
About AFM Téléthon
AFM Téléthon is a patients' organisation fighting neuromuscular diseases, rare genetic disorders that kill muscle after muscle. Its primary goal : to conquer the disease. Every year in December since 1987, they organize the Telethon, a TV program combined with an exceptional momentum that gathers thousands of participants throughout France and overseas departments, that gives AFM-Telethon the means to continue its fight against disease.
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